We have an appointment with the Neurosurgeon and the Craniofacial specialist next Wednesday, the 15th, at 11:15--again at Primary Children's Hospital. So we won't know more until then. Some of the questions popping up from some of you and amongst ourselves are how many places of her skull have fused together--if more than one at all--how long until damage would have actually taken place, will she have to wear the helmet and if so for how long, what would have happened had we not caught it now, will she need a blood transfusion, how soon the surgery will be obviously, how long the hospital stay will be, etc. I mean seriously, I really wonder what has happened to people that they never caught this--how long does it take for enough pressure on the brain to build up and cause problems?
If there are any more questions you and I have discussed, or you are wondering, then please post a comment because I really really want to cover everything that we are wondering about at this appointment!!!
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